Thursday, April 4, 2013

Tough times and Its Spring finally!- Living with SMA

I need some divine intervention again. Sometimes,I feel I just want to give up and throw the towel in when it comes to difficult times . It seems the difficult times just do not want to leave us. How much can a person take you know? I just can NOT give up ! Its not in my nature to give up.

Paul still has heard nothing about his SSI claim. He can not work. He is not physically able to.
 I am Lizzy's caregiver and I have taken care of her since she was a few weeks old. I feel so bad leaving her if I go getting a job. I guess there is no choice I am going to have to. I do not trust anyone to take care of her. I take care of Paul and Lizzy. Lizzy gives me so much joy watching her grow but then watching Paul  struggle so badly I worry so much about him. He is so cranky these days and he has to nap every day for 2-3 hours. He used to be so good with Lizzy but he has no patience because he is in so much pain these days. I do not get depressed until I start paying the bills and I have nothing left and come up short for one of the bills.  We had a good many years and both of us worked so hard. I just do not understand why we have to be the ones that have endure with the hard times for so long.  
Lizzy needs a handicapped van so badly too. There is so much we need but we get by with so little. 
With out the love from friends we would not have been able to get as far as we have.
Enough , dwelling on the negative!! 

Lizzy is doing awesome. Her Mom and Dad went through a terrible break-up recently but Lizzy has done really well. She is beautiful and happy. She seems to have adjusted well  Kids are amazing on how they bounce back so quickly. She is busy "Bossing " us or giving her two cents on situations!! She does not miss a thing. Love watching her grow into the person she is. What a year but,  we made it through March for the first time in two years with being in Madison!! We can breathe a "sigh of relief". She also had a great Easter weekend. 

Its finally showing signs of Spring. Flowers are starting to coming up through the dirt, the smell of spring , days are getting longer and it is getting warmer. This is my favorite time of the year. The season or renewal.  Now, my allergies may disagree but, my heart is into this time of year. 

Prayers for my sister Lisa. She just went through a major stomach surgery. It was a brutal surgery but, she is on her way to recovery. She just needs some prayers. 

"We believe in miracles because we live with one!"
www.our-sma-angels.com/elizabeth