Thursday, March 21, 2013

Hey, Spring where are you?-Living with SMA

 March. 12
The sun was shining today for the first time in a long time today and  all of sudden it got dark and it started snowing these huge snow flakes. Got so bad we could not see across the street . I heard it thundered out-side too. Then, the sun came back out for a few minutes. We were hoping for Spring soon so Lizzy and I could go out walking. She is anxious to take her newest power chair out and cruising. She is doing very well these days. She is in her power chair 6-8 hours daily. Its like a totally different way of life since her spinal fusion. Amazing.. to say the least. She is so smart but really sassy besides opinionated these days. She is happy and quite content that her mom spends a lot more time with her. She doesn't even complain when her mom is out anymore.

Corbyn turned 4 today. "Sigh". Hard to believe he is that old. Lizzy and him are very close.

The time changed Sunday and I do not think Lizzy and I have caught off from losing the hour sleep. If it means that Spring is closer we will adjust real quick..
Praying for good things to happen to us this spring. I think we are way over due.
We can not wait to get outside and start walking. 
"We believe in miracles because we live with one!!"