Wednesday, March 25, 2020

Living with Spinal Muscular Atrophy in a world with Covid-19


Lizzy and Kolton got a new puppy to deal with home-lock down that is in place.
I know I have NEVER been so scared in my life as I am these last few weeks! Covid-19 is killing healthy people! Lizzy and I have not left the house because of the flu every where since after Christmas. She has missed 3 appts for her Spinraza injections.
 It scares me so much with Lizzy let alone my husband has COPD , diabetes and 65 I have made sure we are prepared for not getting out for weeks. .I have frozen leftovers made eggs for dinner and really just making sure we have enough to get through 3 weeks. .
I have tried to keep stocked up on groceries and our needs. I pray for our nation and our world.

I lost my Uncle last week from Colorado from heart issues and my Aunt can not have a funeral till this summer and  she had to cremate him. How sad..... My heart goes out to her and my cousins.

We need to unite as American as humans and spread positive words on social media. Spread love and Hope!
We put hearts on doors to help others believe in Hope and Love!. My grand-daughter Caitlyn is supposed to graduate. No Prom.... Send her prayers and positive energy! Think about the elderly! Some people lost their jobs!  Call them. Reach out by calls or video chats!  People like us that are too much as risk to get groceries call and ask them if they need anything.  We are okay but, others like us may not be.!  Spread HOPE, LOVE and CARING!!

" We believe in miracles because, we live with one!"