Thursday, November 9, 2023

The saddest day of our life.

 


Elizabeth Huette Obituary

Elizabeth "Lizzy" LeeAnn Huette, 20, of Pontiac, unexpectedly passed away on Monday, November 6, 2023, at American Family Children's Hospital in Madison, Wisconsin due to complications involving her life long, courageous battle, with SMA (Spinal Muscular Atrophy).

You are welcome to join in celebration of her life this Friday, November 10th, from 2:00 to 4:30 with services being held from 4:30 to 5:00, at the United Methodist Church in Pontiac.

Lizzy was born in Pontiac, Illinois, on September 29th, 2003, and she spent her entire 20 years of life here. You might have seen her speeding by in her powerchair, as one of her favorite pastimes was strolling downtown with her family.

Lizzy was enrolled in Pontiac Township High School and would have graduated this coming May, to the thanks of her amazing teacher April Schneeman. She was not just stubborn in personality but also in her approach to life. No one or nothing was going to tell her what she could or could not do. Lizzy inspired many; she was the MDA (Muscular Dystrophy Association) ambassador of Central Illinois for three of her younger years. Diagnosed with SMA, type 1, she was initially given only two years to live. However, that didn't stop her from living two beautiful decades surrounded by loving friends and family. Lizzy was far more than just a survivor of SMA; she was the embodiment of spirit, sarcasm, and love.

Lizzy loved to travel, her favorite destinations including California, Wisconsin, and the Cure SMA conventions. Lizzy always wanted to be outdoors, she was adventurous and curious, wanting to see as much of the world as she could. In her later years, Lizzy enjoyed spending her time online, shopping, talking to her friends, and researching the world around her.

Lizzy's family include her mother Christen Huette, brother Kolton Huette, grandmother Jeanna Huette, grandfather Herbert "Paul" Huette, and great-grandmother Barbara Hurt. As well as her aunts and uncles, Dana (Caleb) Baxter, Dawn (Jeffrey) Cotter, Jessica (Tad) Dunlap, and her many cousins. Lizzy is joined in her journey through the afterlife by her great grandparents: Bobbie J. Hurt, Homer and Rosalind Reed, and Milfred and Janet Noel, and her beloved pets Pepper and Wrigley.

Published by The Pantagraph from Nov. 7 to Nov. 8, 2023.
To plant trees in memory, please visit the Sympathy Store.

Memorial Events
for Elizabeth Huette

NOV
10
Celebration of Life
2:00 p.m. - 4:30 p.m.
United Methodist Church
Pontiac, IL
NOV
10
Service
4:30 p.m. - 5:00 p.m.
United Methodist Church
Pontiac, IL

Friday, April 14, 2023

 


We just got back from Madison. It was a great visit. Lizzy saw all her team from UW and wow it was one of our best visits. She has the best people watching over her.

She had 30ccs of blood work. One poke! They are the best! I have been getting her results back since Wed.  She is normal in everything! That is so great to hear, She is 19 and I have made changes on my own and was certainly worried, Phew! That was great to hear.

Lizzy's x-rays since her Spinal fusion have not changed! DR. H did a great job!  Thank goodness Lizzy had fusion while he was still there. 

Lizzy is a strong amazing young lady. I am so proud of her. 

Prayers for all the sick kids and the world! Spread Kindness! 

"We believe in miracles because, we live with one!" 

Wednesday, June 22, 2022

                                                                   Happy SUMMER 2022



Tuesday, March 1, 2022

Pray for Urkraine!

 


The Ukraine president Volodymyr Oleksandrovych Zelenskyy is an heroic leader, History will reward him with his bravery and leadership.

He is trying to keep his people safe and free from an evil dictator and keep them free from Putin's rule!!


Why Ukraine matters to Putin - why he wants Ukraine:

For those who ask: “Why does Ukraine matter? “
This is why Ukraine matters.
It is the second largest country by area in Europe by area and has a population
of over 40 million - more than Poland.
Ukraine ranks:
1st in Europe in proven recoverable reserves of uranium ores;
2nd place in Europe and 10th place in the world in terms of titanium ore reserves;
2nd place in the world in terms of explored reserves of manganese ores (2.3 billion tons, or 12% of the world's reserves);
2nd largest iron ore reserves in the world (30 billion tons);
2nd place in Europe in terms of mercury ore reserves;
3rd place in Europe (13th place in the world) in shale gas reserves (22 trillion cubic meters)
4th in the world by the total value of natural resources;
7th place in the world in coal reserves (33.9 billion tons)
Ukraine is an important agricultural country:
1st in Europe in terms of arable land area;
3rd place in the world by the area of black soil (25% of world's volume);
1st place in the world in exports of sunflower and sunflower oil;
2nd place in the world in barley production and 4th place in barley exports;
3rd largest producer and 4th largest exporter of corn in the world;
4th largest producer of potatoes in the world;
5th largest rye producer in the world;
5th place in the world in bee production (75,000 tons);
8th place in the world in wheat exports;
9th place in the world in the production of chicken eggs;
16th place in the world in cheese exports.
Ukraine can meet the food needs of 600 million people.
Ukraine is an important industrialised country:
1st in Europe in ammonia production;
Europe's 2nd’s and the world’s 4th largest natural gas pipeline system;
3rd largest in Europe and 8th largest in the world in terms of installed capacity of nuclear power plants;
3rd place in Europe and 11th in the world in terms of rail network length (21,700 km);
3rd place in the world (after the U.S. and France) in production of locators and locating equipment;
3rd largest iron exporter in the world
4th largest exporter of turbines for nuclear power plants in the world;
4th world's largest manufacturer of rocket launchers;
4th place in the world in clay exports
4th place in the world in titanium exports
8th place in the world in exports of ores and concentrates;
9th place in the world in exports of defence industry products;
10th largest steel producer in the world (32.4 million tons).
Ukraine matters. That is why its independence is important to the rest of the world.

Monday, February 28, 2022

 Our Beautiful, spunky, intelligent ,sweet and rare young woman named Lizzy. #RareDiseaseDay


Wednesday, December 23, 2020

Article on Lizzy - Living with Spinal Muscular Atrophy Type 1

 https://www.pontiacdailyleader.com/story/news/2020/12/22/lizzie-huette-battles-sma-type-and-taking-new-drug/4015772001/

Thursday, April 30, 2020

43 days on Home Lockdown/ Just to remember what we lived through /Living with Spinal Muscular Atrophy!

-Today is April 30,2020
We are (at average) at 43 days of social isolation. In the US alone, there are just over 1 million confirmed COVID-19 cases with 58,000+ deaths as of this morning.
- Schools have been out since March 13th in Illinois and will not reopen for the 2019-2020 school year.
- Only “essential” retail stores open are grocery stores, hardware stores, and pharmacies. Amazon delivery windows average 3 - 4 weeks when they used to be a maximum of 2 days. No gyms are open, and it’s almost impossible to find weights, exercise equipment, bikes, etc.
- All extracurricular/volunteer/business meetings and other gatherings are now on virtual meeting platforms i.e.(Zoom, House Party, Go to Meeting, Whats App, Webex, Google Duo). Hang in there, life will continue and eventually, all together, we will get to a new normal!
- There are lines / tape inside the stores on the floors to keep people 6 feet apart.
- Bars and restaurants are open only for takeout, home delivery & drive through.
- Playgrounds and sports fields are closed. Most beaches, parks and cemeteries are closed to the public. No visitors are allowed in hospitals.
- All major and minor league sports competitions have been canceled as well as kids' sports. The NFL draft was done virtually this week. It was special.
-American Idol was done virtually this week.
- All festivals and entertainment events have been banned.
- Weddings, family celebrations, and graduations have been canceled. Funerals limited to 10 people graveside.
- People are doing drive-by parades to celebrate birthdays.
- Young kids can’t understand why they can only see grandparents & other extended family and friends on a screen or thru a window if someone visits in person or on Facetime online.
-Visitors are prohibited at nursing homes and assisted living residences.
- Hugs and kisses are not exchanged.
- Places of worship are closed or online.
- We have to stay away from each other more than six feet.
- There is a shortage of disposable masks and gloves in hospitals.
- People are wearing masks, some places REQUIRE that you wear them to enter! People are even sewing their own cloth masks for sale or donation to medical facilities. Illinois announced that as of May 1st, face coverings are required in public over the age of 2 where social distancing cannot be maintained.
- Toilet paper, hand sanitizer, bleach, antibacterial wipes and anything Lysol or Clorox is in short supply and limited per person.... IF you can even find them! (This goes the same for flour and yeast).
- Stores are closing early to disinfect everything. (24 hour stores are even closing by 6, 8 or 9pm)
- Store check outs, pharmacies and even fast food drive thru windows have added plexiglass between the employee and the customer. Have to reach around or under to pay!
- You can't find isopropyl alcohol easily. .. the supply per person is limited.
- Australia, USA, Canada and Europe have closed their borders.
- Western Australia has been divided into 9 territories & an instant $1,500 fine issued for crossing the border without a valid reason. (Transport workers, Essential services etc)
- No one is traveling for leisure. Airports are empty. Tourism has the worst crisis in history.
- Wi-Fi and cell phone providers have extended their limits to provide connection to the Internet for people to continue to work from home and for students to learn from their teachers.
- Many public pool access, concerts and summer activities will not be allowed/take place.
- We don't know if baseball seasons will start, hockey season will continue/end or any summer camps, etc. will run. Lots of teen/college summer jobs are up in the air.
-Colleges have not made definite decisions about whether to take their classes online, in person, or open at all for the fall.
-K-12 has ended their school year and plans to open for the fall have so many unknowns, social distancing, new guidelines for keeping everyone safe. How will it be scheduled? Can sports and activities continue as they have?
- Society appears to be divided about whether or not we should continue to isolate or open back up and get the economy going. It's an election year and politics are messy and complicating this issue.
Why do I post this?
Next year & then every year after, this status will appear in my Facebook memories feed. And it will be an annual reminder that life is precious & that nothing should be taken for granted. We are where we are with what we have. Let's be grateful.
This text is not mine, but I copied from a friend because I want to remember it, too.