Lizzy is doing great. Few sinus infections here and there but, doing well. Sassy as ever! Her brother is growing so fast!
I am so busy these days so, I do not get to update very much!
We are losing DR.Schroth in about a month. So sad! We dont know what we will do with out her. We have gottem through the last 14 years with her just hope we can get through next 14 years and beyond with out her. She helped save Lizzy's life and many kids with SMA. She fought for these kids and now she is quitting her practice. A new chapter in our life starting Jan. 2018!  Pray we get through it with not many issues!!

Happy Thankgiving to you all!!

www.sma-angels.com/elizabeth 

Summer is finally here/ Living with SMA Type 1

Its finally beautiful out!

So, much has happened this last year. So, many babies in our family and we just had a new one this past week. Ava Jean Grace Huette born to my grandson and his wife Ali.

We have dealt with a lot but these things have made us stronger. We figured out who is important to our lives, 

Lizzy is doing good . We have an upcoming appointment that might help her! 

More to come to come stay tuned