Thursday, February 28, 2013

The Next Chapter in our lives - Living with SMA

Thinking about the events in our lives the last almost 10 years I could probably write a mini series. ( chuckle)
Boy, did that feel great to get those thoughts off my chest!! Lizzy and her mommy finally have gotten closer with out interruptions!! Its great to watch the bonding!

Oh a good note Lizzy is doing FANTASTIC!! Great doc appointments in Madison. DR. Schroth  says "Nothing surprises her. She is Just Lizzy"  LOL ! DR Halanski was so excited to see Lizzy. He says she is doing so well!!  
She is such a great kid. She is so full of life and such a joy to be around. She says things that crack you up constantly. She is in her power chair 6-8 hours a day. Moving so much more with her arms. Unbelievable that she seems so much stronger since her surgery.
Today, she has been a bit more handful than usual. We had a phone call this morning her Dad wanted to talk to her for the first time in a really long time at 6pm. She doesn't want to talk to him because all he does is "drill" her about things. She was upset. He did not call her thank goodness. "Sigh of relief"  Her Mom is home now and she is much better.
 We saw one of Lizzy's favorite people in Madison our friend Katie. Lizzy loves her girls too but the weather was really bad so did not get to see the girls :( .

We need Spring to be here soon!! . So we can get outside and actually walk!! Lizzy did go sledding at home last weekend. Loved it.


Starting a new chapter in our lives. Pray it goes so much more smoother!

Prayers for all the sick kids.

"We believe in miracles because we live with one!"
www.our-sma-angels.com/elizabeth 

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