Huge News for SMA!!!
The clinical trial for gene therapy is expected to begin in early 2014 and will be limited to Type I
SMA patients, ages birth to 9 months.
Thank you to all the people that helped!! Many prayers have been answered!!
Lizzy will be 10 years old in 8 days!! Can you believe it? They said s"he would not make it to age 1 and at the most age two!! " I will be sending a letter to the neurologist diagnosed her for the first time in about 5 years. I used to send him a little note on Lizzy's birthday and diagnosis day after she hit two years old for quite a few years. I had quit because, I wanted to be positive and not dwell on the fact he did not know what the heck he was talking about. He also. did nothing to help the babies that had SMA type 1. We trumpet in the realization Elizabeth will be 10 years old on September 29!!
"WE BELIEVE IN MIRACLES BECAUSE,WE LIVE WITH ONE!!"
www.our-sma-angels.com/elizabeth
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