Thank you for giving Lizzy the best birthday ever

THANK YOU ALL FOR THE BIRTHDAY WISHES FOR LIZZY!!!!!! SHE HAD A GREAT DAY!! She had a small little gathering birthday party on Sunday with cake and ice cream. Yesterday, she had phone calls with birthday wishes from all over the country from 9:30 Am -10pm last night. She had ecards (so many ecards)She had her boyfriend Charlie sing to her on the phone. She had our friends from California Molly and Andy sing to her. It was quite a day . She had some presents in the mail from so many people and more coming!! She even had her teacher(From Last year) stop by the house last night and bring her a present. Lizzy was dressed in her (fancy Nancy Dress LOL )Thank you ALL for what you do and have done for Lizzy. I am truely touched.I still can not believe she is 5!!

Miracle child with SMA Turns 5 today

Our miracle child and little wild child Elizabeth Lee Hallam turned 5 years old today. The specialist who diagnosed her did not give her life expectancy to 1 1/2 years old and at the most 2 years old. So much for him knowing anything. If we would of sat back and listened to him Lizzy would not be here today.
We got Lizzy out to Stanford a month after she was diagnosed and that was the best choice we ever did make. Thank you DR.Wang. Thank you DR. Willam Hough for believing in us and helping us get what we need for Lizzy. You are always there for Lizzy.
My "little princess diva" turned 5 today and is the most wonderful little girl! She is a fighter, she is ornery, she is determined and she is my heart and soul.
We have been through so much the past 5 years and now looking at the future is easy. We used to be glad we got through a day. She is so strong and so smart besides beautiful.
I was telling Christen (Lizzy's Mom) today looking at what things were 5 years ago and said " I turned in my leathers for helping Lizzy ". I gave up my life the way it was to help her and I believe I am a better person for it. I always did have a heart but I have meet so many people that are so great. I have Real friends now. Things in every day life that used to totally tick me off mean NOTHING anymore. There is so much meaning now in the phase
"Dont sweat the small stuff". My life has meaning and purpose.
Thank you all that helped me with Lizzy. Thank you DR.Schroth , Dr . Wang, DR, Hough, Lisa Watson and all the parents that have helped us through this whole journey!!!!!
Having your support and guidance helped us so much helping Lizzy!!
www.our-sma-angels.com/elizabeth

Princess feeling a bit better tonight

The Princess is doing better today. She is not whining or throwing fits. She is still getting gunk out and still not over this sinus infection yet.
She hopefully will be able to have her 5th birthday party tomorrow.
Christen went to the stride and ride MDA event in Chicago and had a great time. Lizzy and I were unable to attend of coarse. Christen got to meet Chloe and her Mom Kathleen. Christen said Chloe was just the cutest. It would of been so great if we were able to go. Lizzy just could not this time.
Our own area Stride and Ride event will be in two weeks from today and it will be a day after we get home from Stanford. So, I am not sure if we will be able to attend or not.
The Doebberts made it safely to their MAW trip in Florida!! Hope they have just a great time!!
Mary Kate is still pretty sick so extra prayers for her. Addison is also not feeling well and Dani is doing better. Stella is home now. So prayers for them. MJ said she was not feeling good either so I hope she feels better too!!
Pray for my princess so she is able to enjoy her birthday party tomorrow!!
www.our-sma-angels.com/elizabeth

Update on Lizzy

Thank you for the support and the prayers.
Lizzy is still getting thick gunk up from a sinus infection. She has been so whiny, yelling and throwing major fits . Poor sweetie is just miserable. Lizzy is on every three treatments ,extra fluids, antibiotic and will NOT NAP or take extra bipap.
She is a "tough Cookie " That is for sure.
Christen (Lizzy's Mom) is going to the Chicago MDA walk and leaving tonight to spend the night with Billie her kids Payton and McKinsey. Lizzy and I are staying away from everyone so she is well for her party on Saturday.
I just heard Aubrey is sick too and dropped pretty low o2 today and Mary Kate was intubated. Sophia S is not feeling well either. Prayers for all the sick kids. Dani, Gabby and Stella are doing better.
Sophia D is doing her leaving for her Make a Wish tomorrow morning!! Hope she was a great week!! Whoooooo hooooo Sophia!!

For more info on SMA Type 1 . Please Read Lizzy's web-site.
www.our-sma-angels.com/elizabeth

My girl is not feeling well.

Lizzy has more secretions spiked a temp and has been coughing up plugs. Here we go ugh...... I have upped her treatments have her on extra fluids and she is starting Zithermax today. So, please....... prayers our way so I can manage this at home. So I feel no sleep coming on. But that is okay Lizzy is worth every moment of extra anything!!

On a good note I lost 3 1/2 pounds in a week!!! I can not believe it. I am shocked. Yeah me!!

Got the confirmation for our Stanford appt today. We can not wait to see Molly and Andy!! We also meeting up with the Goodsons!!

Many prayers for ALL the sick kiddos!!

Hi Everyone:Please keep Mary Kate Bigelow in your prayers. She is at St. Paul Children's hospital right now. Donna took her in Tuesday night after fighting a virus all week with fever, thick secretions & high heartrate. She is on bipap and is receiving IV antibiotics.Please pray for a quick turnaround. Also prayers for Donna(her Mom) ...she had been up all night.

They are thinking about intubation.

Mary Kate is a Type 1/ 2 and is 6 years old from Minnesota

Official 2009 Spinal Muscular Atrophy Calendar

Hi everyone:

Just thought I would give you the Official 2009 SMA Calendar Update. As of today the calendar is up and is available on Cafe Press in the B4SMA store. Once again, the calendars will be $20.00 with the profits going to Marshall's Miles and SMA Support. It is http://www.cafepress.com/b4sma/1826918This calendar was designed to raise awareness and funds for Spinal Muscular Atrophy.Buy your OFFICIAL 2009 SMA Merchandise today! Proceeds from merchandise (other than the calendar) benefits B4SMA! For Merchandise, http://www.cafepress.com/b4sma/3677699This year, there are almost 140 kids that are featured. Thanks to Logan P's family for suggesting a montage, so in order to feature each kid individually, MJ has created a montage at one true media. Watch the promotional video http://www.onetruemedia.com/shared?p=69500ee4ac7d16e9a6cea1&skin_id=1603&pid=624&utm_source=otm&utm_medium=text_url . I encourage you to bookmark this montage for your convenience. For those of you that have blogs, please post this information to hopefully get more people interested in the calendar this year and to create more awareness for Spinal Muscular Atrophy. There will not be a cheat sheet this year because once you watch the montage, you will not be able to forget these precious faces.