Well I made it to 50. Fat, sassy and now old. LOL That's me these days!!
Lizzy met Senator Rutherford today. He was pretty excited to meet her. We got some pics and she told him "Thank you for helping her get her purple power chair" She was shy... LOL Lizzy shy!! His staff seemed excited. We told him we have his asst Peg on speed dial. Its was a pretty good visit. She got a little raspy for a few minutes but I think it was the humidity today. She has been fine since we got home.
I got a phone call from Halli tonight from Iceland. He told me Ragnar is so much stronger doing the PBA and shocking the doctors! That is so great!! We had a great talk. He said I talk fast.... I always have talked fast!! LOL . I loved talking to him!!
Well, I have to get Lizzy to bed. She had a busy day.
Caitlyn's party is tomorrow so I must also rest up for a 5-6 years at her party. Lizzy is going also of course.
Friday, July 18, 2008
Thursday, July 17, 2008
Great news on the post below. The Grandmother got custody today. I just hope she is proactive and helps the baby quickly.
Lizzy has a date for a picture tomorrow with Senator Rutherford!!
They have help us with so many issues. They helped get approval on Lizzy's power chair and SEVERAL things. His asst Peg is the bomb!!
Well time to get Lizzy to bed.
I will try to update tomorrow.
Lizzy has a date for a picture tomorrow with Senator Rutherford!!
They have help us with so many issues. They helped get approval on Lizzy's power chair and SEVERAL things. His asst Peg is the bomb!!
Well time to get Lizzy to bed.
I will try to update tomorrow.
Wednesday, July 16, 2008
I just had to share this tragic event.
A father and mother murder/suicide in Colorado. The baby was diagnosed with SMA after they died.
Here are the articles. Please write the media!! This is a miscarriage of justice. This is one of the saddest stories I have ever heard.
Please pray the grandma gets custody and helps this baby before its too late!! They do not mention that the baby had SMA . A very good friend of mine was contacted by the grandmother yesterday . http://www.rockymountainnews.com/news/2008/jul/03/daughter-dead-couple-had-multiple-leg-fractures/?printer=1/
http://www.9news.com/rss/article.aspx?storyid=94862
http://www.kktv.com/home/headlines/22762484.html
On a good note Lizzy had a blood test today and only one poke!! The nurse Kay at DR. Hough's office said Lizzy has more muscle on her arms and the vein was easy to find. whoooo whooo hoooo yeah
On bad note I have the dreaded poison ivy !!!! Got it at Dawn's Saturday I guess. I dont know where for sure we got it but Paul and I both have it and no we werent we not rolling around in the weeds together. We are too old even though it sounds like fun!!
A father and mother murder/suicide in Colorado. The baby was diagnosed with SMA after they died.
Here are the articles. Please write the media!! This is a miscarriage of justice. This is one of the saddest stories I have ever heard.
Please pray the grandma gets custody and helps this baby before its too late!! They do not mention that the baby had SMA . A very good friend of mine was contacted by the grandmother yesterday . http://www.rockymountainnews.com/news/2008/jul/03/daughter-dead-couple-had-multiple-leg-fractures/?printer=1/
http://www.9news.com/rss/article.aspx?storyid=94862
http://www.kktv.com/home/headlines/22762484.html
On a good note Lizzy had a blood test today and only one poke!! The nurse Kay at DR. Hough's office said Lizzy has more muscle on her arms and the vein was easy to find. whoooo whooo hoooo yeah
On bad note I have the dreaded poison ivy !!!! Got it at Dawn's Saturday I guess. I dont know where for sure we got it but Paul and I both have it and no we werent we not rolling around in the weeds together. We are too old even though it sounds like fun!!
Monday, July 14, 2008
July and being 50
Well I will be a half a century old here in a few days . July 19 I will be
50. I was born July 19, 1958 . Wow, it hard to believe what I have lived through and it all seems like yesterday. I remember being 13 and working at the Root beer Stand and car hopping for 50 cents an hour. I remember all those boyfriends I had. Which after I turned 14 were many. Every one meant something. The Doobie Brothers Concert, Blue Oyster Cult, Black Oak Arkansas, Led Zeppelin, hip hugger blue jeans, crop tops, and moccasins. My marriage to my husband was Dec 1974. I was 16!! My first daughter Dana in 75 . Then my Dawn in 79, Jessica in 82 and my baby Christen in 83.
So much......I have lived. Paul is still with me so I must of done something right. We loved riding the harley ,buying leather and partying. It was great to be hot and feeling the wind in my face after the late 30s hit and my kids were bigger and we did things together again alone.
I remember riding Chuck one of our horses and him getting close to home after riding the section and ending up in the barn in his stall because he would take off on me. Riding the motor bike and my brother chasing me on gravel roads to take the motor bike away!! Partying oh my gosh I loved to party LOL My gosh the memories. I was a rebel.
Then about 5 years ago a little miracle entered my life and my whole life changed. She has showed me how not to take life for granted. She has taught me so much. Life feels totally different. Things that used to stress me out are "poof "nothing anymore. I had to teach myself patience. I surely was not born with patience but I have learned some in the past few years. Most of all I learned not to give up.
My old friends gave up waiting on me and I lost them . I had to make sure Lizzy was going to be okay. They just didnt get it. How I could put a child first in my life and a grand-child at that. I had to fight to save her.
Still I worry about Lizzy but not as much as I used to. My brother was here from Kuwait and took me out to eat Saturday and I left for a few hours and it felt so good to be out for awhile. Then I started to worry so I called Lizzy (at home with Christen) and she wanted me home since she was tired . I did not even think twice I went home.
Since she entered my life..... my life really means something to her and many others. God put me here I feel to help fight for her and other kids with Spinal Muscular Atrophy. I do what ever it takes to give her the healthiest happiest life as possible.
So, yes my 50 years has gone by fast but I am content. Love makes you that way.
Have a great summer.
50. I was born July 19, 1958 . Wow, it hard to believe what I have lived through and it all seems like yesterday. I remember being 13 and working at the Root beer Stand and car hopping for 50 cents an hour. I remember all those boyfriends I had. Which after I turned 14 were many. Every one meant something. The Doobie Brothers Concert, Blue Oyster Cult, Black Oak Arkansas, Led Zeppelin, hip hugger blue jeans, crop tops, and moccasins. My marriage to my husband was Dec 1974. I was 16!! My first daughter Dana in 75 . Then my Dawn in 79, Jessica in 82 and my baby Christen in 83.
So much......I have lived. Paul is still with me so I must of done something right. We loved riding the harley ,buying leather and partying. It was great to be hot and feeling the wind in my face after the late 30s hit and my kids were bigger and we did things together again alone.
I remember riding Chuck one of our horses and him getting close to home after riding the section and ending up in the barn in his stall because he would take off on me. Riding the motor bike and my brother chasing me on gravel roads to take the motor bike away!! Partying oh my gosh I loved to party LOL My gosh the memories. I was a rebel.
Then about 5 years ago a little miracle entered my life and my whole life changed. She has showed me how not to take life for granted. She has taught me so much. Life feels totally different. Things that used to stress me out are "poof "nothing anymore. I had to teach myself patience. I surely was not born with patience but I have learned some in the past few years. Most of all I learned not to give up.
My old friends gave up waiting on me and I lost them . I had to make sure Lizzy was going to be okay. They just didnt get it. How I could put a child first in my life and a grand-child at that. I had to fight to save her.
Still I worry about Lizzy but not as much as I used to. My brother was here from Kuwait and took me out to eat Saturday and I left for a few hours and it felt so good to be out for awhile. Then I started to worry so I called Lizzy (at home with Christen) and she wanted me home since she was tired . I did not even think twice I went home.
Since she entered my life..... my life really means something to her and many others. God put me here I feel to help fight for her and other kids with Spinal Muscular Atrophy. I do what ever it takes to give her the healthiest happiest life as possible.
So, yes my 50 years has gone by fast but I am content. Love makes you that way.
Have a great summer.
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