Its been a great Summer!!

Lizzy went to a minor league baseball game(Saturday) and Reed Michael's 17th birthday party. (Sunday).She has had a great SUMMER. One more big trip and we will probably be home bound till after winter. She has even been shopping at Walmart! Lizzy had a great visit with Dr. Schroth and the Muscle clinic staff. She is very happy to see how great Lizzy is doing. We did fasting amino testing to see how Lizzy is doing and any diet changes. They took 10ccs of blood for that and some other testing DR.Schroth ordered.Lizzy's movement is increased a lot in the passed 6 months. It was over all a GREAT Visit. One of the best ever. Her curve is at 20 degrees and that was still great they said but we are watching it close. Lizzy is always wiggling some how so the nutritionist Erin said she thinks Lizzy is burning a lot of cals from all her movement. She is on the high end of cals for SMA but doing great. Still a peanut but she looks bigger than she is. They did her weight twice because they did not believe how much she weighs. They all said she looks great, sounds great and moves great. Lizzy went to MDA lock up in Peoria and had a great time yesterday . She had pics taken with the UAW union President Rick Doty and Jonny Rovatti (Magician) . She stole their hearts .
The MDA Telethon is this coming Sunday!!! She is so excited!!
She also gets to see her friend Sophia from the Chicago are and staying with her Grandma Pat soon. We also have a trip to Kentucky and get to see lots of Lizzy's friends.This has been a great summer for Lizzy!!
Lizzy is getting her Max Easy Chair size 2 FINALLY. It may take a few months but its all working now. It was ordered for her almost a year ago and now its finally getting taken care of!! I got a call from BL on Tuesday and Lizzy gets the last one. John our rep is getting it for us. BL is hoping to get another company to build her the frames but at present Lizzy got the last one since hers was ordered over a year ago. So, I can give back the loaner ones we have from Laura . Other kids can use them that have such a tough time like us getting one like we have. Laura is such an awesome lady!!
Things seem to finally to be falling in place.
We fly to CA in October 7 and are staying an extra day because the flights were 100+ dollars for that wed . It will be so exciting to see Molly and Andy!! ahhhh we have missed them so much!! They had their 50th wedding anniversary a few weeks ago. They are such great people. I think we are more excited to see them than our doctor visit!! LOL
Hope you all enjoying your summer.
Prayers to Charlie (Lizzy's boyfriend) he is sick.
Oh and I am starting another diet after Monday. I hope this one works.