We went to Faith Lodge in Wisconsin and met with 7 other families that deal with SMA on a daily basis. It was a great week-end . Lizzy had a blast. It was so great being able to cough her or suction her in front of people and not have to deal with all the stares.
Lizzy has met some great kids she she refers to as her friends now. She was a hit herself. I was able to share some of her some we do some things for Lizzy that I know will help some of the other families.
I learned a few new tricks from Jen Bolen Jerika's mom.
The lodge was absolutely beautiful . Andrea's Mom and friends prepared ALL our meals and Andrea had activities lined up.
Lizzy loved horse back riding. It was so great to just get away and have a great time with great people.
Hopefully this will turn into a yearly vacation.
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