If the weather here figures out if its going to be winter or spring I think all our lives would be a lot healthier.
Lizzy had a big week last week and so far this week. She had an MDA Lock up last week,shopping trip, speech therapy, she got a new purple stander, her wheel chair adjusted (because she grew so much),colored Easter eggs with Rachael and Caitlyn, and a trip to the Moose Lodge in Streator,IL
The shopping trip we went to our favorite Health food store "Naturally Yours" in Normal and to Krogers. Lizzy had a blast.
She has been really surprising me lately on the stuff she says. She is growing up so fast. She is so smart and such a neat kid.
She still has some thicker than normal secetions after her illness but she has been doing great.
Next week we are going to Courageous Kids in Kentucky. We can not wait to see so many of our friends.
I have been talking to a father that is waiting for the diagnosis of their daughter of 5 weeks. Mom and Dad are both carriers of SMA. I can not even imagine the nightmare these parents are going through. Not knowing is the worst because how do a treat a child with out a confirmed diagnosis of SMA. I gave him DR. Schroth's info.Please add them to you prayers.
After several applications all over the country not many responses yet for a job for Paul. He is so depressed. The new company has not called him back to work. No Union board members have been hired back. Its been so hard for us. This is the worst it has been for us since we were married over 34 years ago.
I will update more later.
We Believe in Miracles!!!!!
www.our-sma-angels.com/elizabeth
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