Meeting The Band Perry and Positive things - Living with Spinal Muscular Atrophy

Lizzy called her Uncle Calib for the third time this week this morning. " Please Uncle Calib let me meet the band Perry Please Please I love them so much!" Then she says " I love you Uncle Calib!"  I know she got to my heart I am sure she got to his too. He does security for celebrities in our area. He was security for The Band Perry. He made no promises but we got a call this afternoon from him and He says "Be here as fast as you can I got you a private meeting with The Band Perry!"  Oh my!! I wanted to cry! he hooked her up!!
Lizzy broke out in her red blotches all over. She gets like that when she gets excited or upset. I hurried and got her coat on. I did not have time to change. Getting Lizzy out the door was my main concern. It was her day, it was her dream and her time  to shine. I stayed home while her Mom took her quickly to the Crystal Palace.  Thank you Kimberly, Neil and Reid Perry for taking time out of your busy schedule to meet our little shining stars Lizzy and Kayleigh. Thank you Calib and The Crystal Palace for giving Lizzy this special gift. Lizzy got to have a special private meeting with The Band Perry( Kimberly, Neil and Reid Perry) and is at the moment still star struck. They are the sweetest people Christen said. Kimberly Perry went and got Lizzy and Kayleigh( Lizzy's friend ) The Band Perry t-shirts . Neil Perry kissed Lizzy on the cheek. Lizzy is still awed. She got to watch the sound check too. Kayleigh got to stay for the concert tonight but because of recent out breaks of Influenza and RSV Lizzy had to come home. She doesn't like being in huge crowds when there is illness like that around. I guess we programed her that way with out even knowing. Lizzy told me" The Band Perry is beautiful!" How is that for a special day in her life? I am sure that today will be a memory she will NEVER forget.
She called me on her Mom's phone after she left and she was actually so" star struck" that she had such excitement in her voice I could feel her aura just glowing even though I could not see her at that moment. I was right when she came in the door her she was glowing.

Paul had a great interview Friday ( the crowd roars!!) He also did testing. Hoping and praying he gets a job soon. This one would be so great!! Its been two years here this coming week that his place of employment closed its doors and was sold to a foreign company. He was not hired back because they busted the union and would not hire back union officers. Paul was UAW  health safety, skill trade rep besides working full time in maintenance. Its been a bad last few years but we are getting through it .
Lizzy is doing great!! She has handled being serial casted with the same casts on over a week now. Her teacher has had a cough so we have not seen her this week but that is okay we want you to stay away with even a tickle in your throat.She is coming back on Monday.
Its been quiet here all week with Lizzy's dad not being around,. Lizzy has being extremely good this week not as much whining from being bored. Paul and her have been spending lots of time together.

Some sad news came our way. My niece's boyfriend was killed instantly in a car-motorcycle accident in Florida this  past week. Keeping Ariel  in our prayers.

We need to add Leah Miller your prayer list. She is pretty sick . Corbyn has been sick too. Christen's friend's Melanie son Lincoln is in the hospital with RSV and pneumonia. Please add them to your prayers.

On a good note thank you to my dear close friend, You are always there for me. Thank you for being in my life. I love you with all my heart.
Thank you to all my friends that are there for us.We are so lucky to have each one of you in our lives.
"We believe in miracles because we live with one!"
www.our-sma-angels.com/elizabeth