Wednesday, March 28, 2012

Lizzy UPDATE- Living with Spinal Muscular Atrophy

 Lizzy is doing well and has NOT shut up since they took the tube out! LOL." She wants to go home" she says. She has a bit anxiety right now because of the "circumstances" surrounding her getting intubated. So, after today the plan is getting her weaned off bipap for at least 4 hours to get her home. The doc that intubated her (Jen) did an awesome job with intubation by the xrays she did not even come close to her vocal cords. That is probably the reason she is talking so much now!! She is so loud too!! She is also getting the Pixie bipap mask today made by RESMED. She thinks its a "Tinkerbell"mask and magical!! LOL"We believe in miracles because we live with one!"

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