Spinal Muscular Atrophy Type 1 and milestones

I am better today:) some people came to my aid. I am so passionate about my beliefs on NIV protocol , AA diet and these kids in general.

Lizzy got her first birthday present in the mail today from the Salus family in Chicago. They have Sophia Type 1. They are a sweet family. So kind. We can not wait to get to spend time with them!! We have a MDA walk this week-end and then Stanford and we are done running all the time. Then we can meet up with them.
Lizzy will be 5 years old next Monday. What a great milestone. Its been quite a journey but I have gained a lot since it started. I have friends that are geniune and learned a whole different way of life. Things I used to take for granted I cherish now. I found this quote yesterday and its meaning is so true:
"I am the creator of my life's experience. Today and everyday I AM creating a life filled with joy, creativity, purpose, and fulfillment."
Prayers for Dani, Stella, Gabby and all the sick kiddos