Lizzy is doing pretty good. We had another busy week. Lizzy's back is doing much better this week. She loved swim therapy on Thursday. Seeing her in the water again and moving like she does warms my heart. Her new swim goggles need some anti fog on them!! LOL as you can see in the picture above.
We did hit some of the Route 66 garage sales on Friday with Jessica. Spent a few dollars but not a lot. I got Lizzy this beautiful wooden music box for 50 cents that sings "Its a small world" with elves on it( pictured above) . Too cute Looks brand new also. I got Paul some brand new Docker Shorts for 25 cents a pair.I got him 5 pair Yeah, 25 cents a pair brand new. Got a few things and it was nice to get out. Its was a beautiful day.
Lizzy gets her new seating on Monday. Her joystick post was busted last night. The last one we had. Paul was trying to charge the batteries since the chair was completely dead and would not charge. She was just in it so not sure why that happened. He had to take the chair a part. He was not having much luck. I think he needs new glasses he is not seeing too well these days. I think he is letting his eyes go. Time to demand he go to get new glasses.
A few days before Mother's day in 2004 Lizzy was diagnosed. That was seven years ago. What we know know compared to what we knew then is totally amazing. The way I thought, the person I was..... I am a totally different person. The fact was though I was not giving up on Lizzy I would fight to help her with my last dying breath I pledged to myself and her. We were told she would not make it to year old let alone two years old . Well, I am here to tell you my girl is 7years 7 months 8 days old and a beautiful, smart , sensitive, courageous and wonderful little girl. She is my heart and my strength.
Keeping a positive attitude it makes life easier. Never Give up HOPE!!
" With ordinary talent and extraordinary perseverance, all things are attainable. "
Thomas Foxwell Buxton
Happy Mother Day to all you great Moms and Grandmothers out there.
I have been forgetting some of my advice I promised.
Swim therapy for a child with SMA is one of the best therapies for child/adults with SMA. Lizzy goes through Easter Seals.
" We believe in miracles because we live with one!"
www.our-sma-angels.com/elizabeth
I had to share this again this year.
The Special Mother
by Erma Bombeck
Most women become mothers by accident, some by choice,
a few by social pressure and a couple by habit.
This year nearly 100,000 women will become mothers of handicapped children.
Did you ever wonder how these mothers are chosen?
Somehow I visualize God hovering over Earth
Selecting his instruments for propagation with great care and deliberation.
As he observes, he instructs his angels to take notes in a giant ledger.
“Armstrong, Beth, son. Patron Saint, Matthew.”
“Forrest, Marjorie, daughter. Patron Saint, Celia.”
“Rutledge, Carrie, twins. Patron Saint…give her Gerard. He’s used to profanity.”
Finally he passes a name to an angel and smiles. “Give her a handicapped child.”
The angel is curious. “Why this one, God? She’s so happy.”
“Exactly,” smiles God. “Could I give a handicapped child a mother who knows no laughter?
That would be cruel.”
“But does she have the patience?” asks the angel.
“I don’t want her to have too much patience, or she’ll drown in a sea of self-pity and despair.
Once the shock and resentment wear off she’ll handle it.”
“I watched her today.
She has that sense of self and independence so rare and so necessary in a mother.
You see, the child I’m going to give her has a world of it’s own.
She has to make it live in her world, and that’s not going to be easy.”
“But Lord, I don’t think she even believes in you.”
God smiles. “No matter, I can fix that. This one is perfect. She has just enough selfishness.”
The angel gasps, “Selfishness? Is that a virtue?”
God nods. “If she can’t separate herself from the child occasionally, she will never survive.
Yes, here is a woman whom I will bless with a child less than perfect.
She doesn’t know it yet, but she is to be envied.
She will never take for granted a spoken word.
She will never consider a step ordinary.
When her child says momma for the first time, she will be witness to a miracle and know it.
I will permit her to see clearly the things I see–ignorance, cruelty,
prejudice–and allow her to rise above them.
She will never be alone.
I will be at her side every minute of every day of her life
Because she is doing my work as surely as she is here by my side.”
“And what about her Patron Saint?” asks the angel, his pen poised in the air. God smiles.
“A mirror will suffice.”
by Erma Bombeck
Most women become mothers by accident, some by choice,
a few by social pressure and a couple by habit.
This year nearly 100,000 women will become mothers of handicapped children.
Did you ever wonder how these mothers are chosen?
Somehow I visualize God hovering over Earth
Selecting his instruments for propagation with great care and deliberation.
As he observes, he instructs his angels to take notes in a giant ledger.
“Armstrong, Beth, son. Patron Saint, Matthew.”
“Forrest, Marjorie, daughter. Patron Saint, Celia.”
“Rutledge, Carrie, twins. Patron Saint…give her Gerard. He’s used to profanity.”
Finally he passes a name to an angel and smiles. “Give her a handicapped child.”
The angel is curious. “Why this one, God? She’s so happy.”
“Exactly,” smiles God. “Could I give a handicapped child a mother who knows no laughter?
That would be cruel.”
“But does she have the patience?” asks the angel.
“I don’t want her to have too much patience, or she’ll drown in a sea of self-pity and despair.
Once the shock and resentment wear off she’ll handle it.”
“I watched her today.
She has that sense of self and independence so rare and so necessary in a mother.
You see, the child I’m going to give her has a world of it’s own.
She has to make it live in her world, and that’s not going to be easy.”
“But Lord, I don’t think she even believes in you.”
God smiles. “No matter, I can fix that. This one is perfect. She has just enough selfishness.”
The angel gasps, “Selfishness? Is that a virtue?”
God nods. “If she can’t separate herself from the child occasionally, she will never survive.
Yes, here is a woman whom I will bless with a child less than perfect.
She doesn’t know it yet, but she is to be envied.
She will never take for granted a spoken word.
She will never consider a step ordinary.
When her child says momma for the first time, she will be witness to a miracle and know it.
I will permit her to see clearly the things I see–ignorance, cruelty,
prejudice–and allow her to rise above them.
She will never be alone.
I will be at her side every minute of every day of her life
Because she is doing my work as surely as she is here by my side.”
“And what about her Patron Saint?” asks the angel, his pen poised in the air. God smiles.
“A mirror will suffice.”
