(Lizzy and her good friend Emma above)
You know I never realized how my whole inner being has become so alive and how my friends I have now are so close to my heart. Elizabeth has changed me so much the past 5 years. Knowing such an amazing child that has such a devastating disease that can always be so happy and so ornery is one of God's gifts to me. She is just breath taking sometimes and make me just gasp at they things she has said or has done. She is truly my miracle.
You got to really believe and pray to get what you need for these kids. I just thank God he has been watching out for us. Lizzy is a true inspiration to so many.
A very good friend of mine is also going to get treatment for her daughter that is indeed a miracle also. She could change so much in our world. They are in our prayers.
Elizabeth has gotten us looking forward to driving to see DR.Wang. She is so excited to be taking her power chair and have papa going. Won't they be just amazed at her? Out is CA they have only seen her laying down never in her chair. We are excited about seeing Molly and Andy. She has been saying for months she wants to see Molly and Andy. I just pray all goes well on this trip.
We are going through IOWA, NEBRASKA, Wyoming, NEVADA and Utah to get to CA. Never been in any of these states but Iowa only flew over them.
We had gotten parts for a desk top and a parent control for Lizzy's chair from another great family last December from their daughters older chair.
Finally , yesterday we spent the day at National Seating with John (Lizzy's rep )and got Lizzy's chair all changed out with her adult control, gel pads her joy stick changed around and arms changed around for her. She is sitting straighter than ever. Paul and John figured out things together for her chair. Life is good.
Many prayers for all the sick kids, for the family going to get their child treatment, For Richard losing his brother and to us to get the rest money needed for out California adventure.
Hopefully. for next trip they get all these guidelines sticker DOT/FAA regs figured out. We are planning on this being a one time drive.
Thank you to all the great people in our life from the doctors to our dearest friends. Thank you all for just being a part of our lives.
We believe in miracles because we live with one.
www.our-sma-angel.com/elizabeth
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