Today we took Lizzy to the Miracle Ride 2009 at Timber Pointe Outdoor Center/ MDA Summer Camp in Hudson, IL. It was a great time for us and Lizzy too. Being a old biker myself(just have NOT been on one since Lizzy's diagnosis) and Paul still actively riding we fit right in. Brandon actually went to the event also which made Lizzy very happy. Big shocker he even attempted to go. He did get kind of freaky a few times take off and left. I just wish....*sigh* any way it was a great time. Lizzy loves all the bikers and is getting to know the MDA people really well. She hears bikes drive by and knows when its a harley.
Next year hopefully Lizzy will get to go to camp. Christen and I will be going with her. This year the MDA Camp here was closed because of the Swine Flu.
We are still trying to figure out our CA upcoming DR Wang appt. I believe we will some how get the funds needed for driving all that way. We are not going with the Goodson's as previously planned. They have made other plans as of today. We have went through trying to fly before and have been escorted off the plane because of a food pump issue that they would not approve at the last minute. We went through NOT getting our luggage when we were taken off the plane and I do not want to even try flying because not knowing where you luggage is at is very devastating. The new DOT guidelines are in effect and we are not putting ourselves through "Trying To fly" knowing we maybe be taking off the plane yet again. A few years ago Obama's office(When he was US Senator) helped us get this taken care of. Now, us knowing the new guidelines and trying to fly is something we do not want to even attempt. This situation is resolved between the airlines and the manufacturers of the respiratory machines. We are leaving the 15th of July some way some how driving Paul has decided tonight just incase any situtions arise along the way. Lizzy's appt is the 21st.
Check out this out !! We know this family . Pretty neat Vince!!
http://www.foxnews.com/video2/video08.html?maven_referralObject=6363746&maven_referralPlaylistId=&sRevUrl=http://www.foxnews.com/foxfriends/
Many prayers to our sick friends and for Jerika who will be getting spinal surgery next week!!
Oh and day 8 and no swine flu here !! Thank goodness!!!!
We believe in miracles because we live with one!!
www.our-sma-angels.com/elizabeth
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