Tuesday, June 7, 2011

Too many Angels ..... Living with Spinal Muscular Atrophy



We lost another child to this terrible disease. Brynlee was a beautiful miracle child that was an inspiration to so many families. She was beautiful child. Her smile would melt your heart. She lost her fight at 2am yesterday.
It was a like a punch in the gut when a good friend called me and told me this little miracle child was now an angel.   http://obitsutah.com/obituary/7058/brynlee-belle-liston.htm
This is the worst part of the SMA World is a death of a child. All of us families have a connection and when one family loses a child no matter if they have met personally we all grieve.
Brynlee will be remembered for her strength and how she hard she fought this disease.
They are having a ball to celebrate her beautiful life. Her mom posted this on facebook.

Time
Saturday, June 11 · 1:00pm - 3:00pm

Location
The rose garden at the Chateau
1910 East 10600 South
Sandy, UT




More Info
Come one, come all,
To Brynlee Belle's Ball!

A Princess Ball is being held in memory and celebration of Brynlee Belle Liston. Though her time with us was short, her life was full of love and laughter and we would like to invite you to come share your wonderful memories of her with us.

Prince and Princess attire is required.
Please RSVP.

Please keep her family in your prayers.
Fly high little princess, fly free of SMA.

"We believe in miracles because we live with one!"
www.our-sma-angels.com/elizabeth

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