Sunday, December 4, 2011

Christmas is sneaking up on us - Living with Spinal Muscular Atrophy

Its been an interesting December so far.
Lizzy had a bad ear infection and then , she started having some plugs. Got her on an antibiotic and she seems much better. Her fever caused her heart rate to jump to 173!!! She is still on extra treatments and experiencing some plugging. UGH..... I love the season just not the illnesses that accompany it. Then, we get out our Christmas tree that has 700 pre-lit lights on it and half the lights are not working.  I know we have had this tree for 6 years but... geessh come on now!! So, since funds are tight Christen and I had to take ALL the lights off the tree.  That was a very tedious job!! A pain in the hiney!! We had wanted to get some lights at Wal-Mart or K-mart. All the white lights were gone!! First week in December and all the Christmas lights were sold out!!  Really? Can you believe it?  Sold out!! So ,after all the work taking those lights off it sits in the corner "Light-less" until we are able to get some light. Christen was going to go get some at another store but..... the van is broke down again!! Paul had changed the roaters and brakes yesterday . Then, Christen was taking Rachael and Robby home and they smelled something burning. Smoke came rolling out from where the tire is.  She walked in the house screaming "That her van was on fire!!" Paul went running out there.  He said " Not sure what is going on but he thinks her brake stuck on." So, they are out there together bleeding the brakes as I write this. " Please pray it works.

Tomorrow, will be our 37th wedding anniversary. I can not believe how fast life goes by . Seems like yesterday, I was sixteen getting butterflies the night before our wedding. Every-one said it would not last. I figure lasting this long in a  marriage we can accomplish almost anything!! Its has not always been easy. Last three years have been  very challenging.

Lizzy is getting better .  My mom is doing better than she has in years!! Christen's neck and jaws are improving. Mine too just not as fast as hers. I am losing weight SLOWLY but losing!

Keep, Hannah Price in your prayers! MJ too!! I have  NOT been updated on Stella , Kennedy or Nick so they are still on our healing prayer list!!

Thank you to all my friends for being there for us!!

"We believe in miracles because we live with one!"
Happy Healthy Holiday Season!!

www.our-sma-angels.com/elizabeth

Dawn just sent home some lights. The tree is now decorated!!


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