Lizzy not feeling well and a Losing start for me(Spinal Muscular Atrophy Type 1)

Lizzy is not feeling herself today. I am not understanding what's up. I hope she is not getting sick. She has been so whiney all day. We have a trip on Thursday to Madison (For OT appt) so please say some prayers for my girl that she is not getting sick. Only thing different is that I had to change her bipap mask to a golden seal from her profile light. Her mask had a leak and she would not wear any mask but this one. Her DME would not send us a new one. We have to wait a month to get her a new one. So for now this is working. Her sats have been good. I just think she is tired and feeling puny. I pray that is all.
I worry so much when Fall hits.

I did it!! I lost 6 pounds and 6 1/2 inches!! (hear the crowd roar) . OMG! I feel better too. Its not a lot but its a start . I am actually leaving the house ALONE 3- 5 days a week and going to work out at curves . I am with actually adults OUT-SIDE of my house. I have not been out (with out Lizzy ) much in almost 5 years.
Hey, I also found this video online that also helped me feel better too. http://pauleugene.com/ This guy really does a great work out. So, I can get myself back in shape doing both. I felted so "pumped" when I got done with only about a 10 min work-out. He also has some videos on You tube.
I have been doing Curves a month now and I think its the best thing I have done for me in a long time.

Time for Lizzy's treatment.
Hope you all are well!!

Sunday

Lizzy had her neutrophils rechecked and they are awesome. Not sure why on her last blood test results she was little low but on a good note She is FANTASTIC. Her amino acids, essential fatty acids and just every-thing is GREAT. I can breathe..... Its self satisfiying to me to know what I feed her is helping her!! She never stops amazing me every day. My gosh I love her so much. She is my fighter, my heart and consumes my soul. She is such a great kid. She just beams.

I am feeling pretty great myself these days I started Curves last week. Paul paid for it. I think it will be great. So far I feel so much better when I get up in the morning. The work out is good and it will get me out of the house 3 days a week at least for about 45 minutes ALL year long. Getting out the house for a 30 minute work out will help me so much I think. Not that I do not love staying with Lizzy 24/7 but this is time for me and to socialize with actual people.

Here is a demo of the work out I am doing for me
http://www.curvesinformation.com/the-workout/circuit-demo/
Hope every one has a great week.
Prayers for Dani Pruit and Stella.