All about Lizzy's life and my life as Lizzy's caregiver. Lizzy has Spinal Muscular Atrophy Type 1 and is a miracle! She has NEVER been able to stand, walk or sit(with out assistance). She is such an amazing child with the determination to over come many of her battles with this terrible disease. She is a happy child and is always smiling.
Saturday, December 6, 2008
The Rough Economy hits us in the face (Spinal Muscular Atrophy)
Its been awhile sorry. Lizzy is doing well!
Paul has been home this week on vacation and we had appointments all week.
Well, we found out that my husband plant is closing down. He was told he needed to go down next week and sign up for unemployment. That waiting week just tough this time of year with no check for a week. Interlake Inc. is supposed to shut their doors for good here. Scary to think about how rough the economy is and then you get hit with it in the face. Wow... There is no jobs around here. If worse comes to worse I will just go back to work. I can do about anything and have been trained in several jobs and have college behind me. I will not be able to care for Lizzy like I do but you do what you have to. We will survive! We are fighters and survivors in this house!!
Lizzy learned how to use her communication device that was loaned to us.
Sarah Wilds from the PRC company got to meet Lizzy and showed her how to use the device. It was great. Lizzy caught on better than any adult she has taught. It was very exciting!! She used a track ball(Did fantastic) at the appointment and at home she is using the Easy Cat. She talks well yes but this also teaches her sounds and words also very cool!! Sometimes she refuses to repeat herself and she is hard to hear.
Lizzy got to experience her first time ever last week playing in the snow last week with her sled. It was great!! she loved it!!!!! She squealed in excitement. Pepper even pulled her in the snow!
Hope you all have a great holiday and keep a heads up. Things will be getting better in the future! Lizzy helps us keep a positive outlook around here.
Many Prayers to all our sick friends!!
I am a great Aunt for the very first time on my side to a Alexis Desirae Reed 6 lbs 14 oz born DEC 5th (on my 34th wedding anniv.) Congrats to my nephew Christopher and his wife Amanda Reed
www.our-sma-angels.com/elizabeth
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