All about Lizzy's life and my life as Lizzy's caregiver. Lizzy has Spinal Muscular Atrophy Type 1 and is a miracle! She has NEVER been able to stand, walk or sit(with out assistance). She is such an amazing child with the determination to over come many of her battles with this terrible disease. She is a happy child and is always smiling.
Tuesday, December 9, 2008
Spinal Muscular Atrophy
Our IL Gov got arrested!! Yeeeeeeeees!! It is about time!! Too much corruption with that guy. Maybe since he was arrested our prison will not close and the special needs funds will be used for special needs instead of Chicago toll roads. Ya think?
Lizzy is doing great.
Its freezing rain out side tonight. We have more snow coming!!
Lizzy has the MDA lock up this week, we are hoping to go the our state senator's press conference tomorrow depending on the weather , speech, swim therapy the next two days so we will be busy.
Paul is still working this week and 3 days the week after and the future is yet to be discussed on closing for sure. They are being very quiet about things. I pray they gets lots of orders in and stay open.
Happy Holidays and God bless.
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2 comments:
I was reading about your crime spree gov. Wow, maybe there is light at the end of the tunnel. I will keep you guys in my thoughts and prayers, I hope they will see all he was doing and change some things fast for you guys! Hugs Sheila
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