All about Lizzy's life and my life as Lizzy's caregiver. Lizzy has Spinal Muscular Atrophy Type 1 and is a miracle! She has NEVER been able to stand, walk or sit(with out assistance). She is such an amazing child with the determination to over come many of her battles with this terrible disease. She is a happy child and is always smiling.
Wednesday, December 31, 2008
New Year ....New hope? (Spinal Muscular Atrophy Type 1)
Its been a rough year for the economy and us. Gas prices went up to over $4.00 a gallon. Many insurance denials. Lizzy got to meet Senator Rutherford. We spent time in CA with great friends and went site seeing for the first time ever in the over 4 years we have been flying out there. We had the first black president elected and will I hope help change the mess the economy is in. So, much to remember in 2008. We have gained good friendships and our lives seem more enriched with warm feelings of those that are close to us. I have a new great niece this year and a new grand baby that will be born in a few months. We have met so many great people this year.
Then Interlake saying they are closing their doors. Paul has worked their for 30 years this past October. The stock market crashed, The lowest interest rates on buying houses in many years, the cost of living increased, Major layoffs nationwide, we had a bad flood here and so did many states and our IL Governor was busted for illegal activities. Its been one of them years to remember. You know when your grandparents tell you stories and they say back in 19....... Well for us it will be back in 2008. Wow. Our world as we know it will be drastically changed. I spent today crying my eyes out worring about our future. Will we have to move? Will we have to see the home we raised our kids in sell to some strangers? We will have to move in with relatives? What is 2009 going to bring us????
It has been a great year for Lizzy. She has grown so much and is doing the best ever. She had a two big trips to meet friends and it was a great year for her. She has gained more movement. She is talking better than ever. In this new year we have lots of decisions to make. The question are we staying here or moving up north. Is Paul going to get a new job ? Are we going to be able to sell the house and come out ahead enough out of it to move. How ae we going to get to CA to get Lizzy's Med to keep her strong? Am I going to get a job and leave Lizzy with her Mom so I can work? ahhhhhhhhhh decisions decisions decisions.
Its always sad to see a year go but its exciting to see a new years start.
I believe in positive thinking and we have the power to change our own destiny. As, I have said before we will be okay. We are survivors. There is a little girl that lives with us that gives us strength and show hows that miracles do happen.
Lizzy had water therapy today and for the first time ever did not complain she was swimming on her stomach.
Hope you have a wonderful Happy Healthy New Year!!!!!!!
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