Miracles and needed prayers (Spinal Muscular Atrophy Type 1)

Lizzy has an ear infection but is doing well considering. She is on an antibiotic right now. I have added Pedilite to her food mixture. She says its still hurts "Just a little bit"

Papa still is on gag order till Monday and can not discuss his job situation but it sounds like they will be closing Interlake here. But....... Miracles do happen.

Speaking of Miracles I wanted to ask you send special prayers for Sartoris family in Pontiac,IL . Vince and Mary Ann's son Sam age 15 became an angel on Jan 1. 2009. Sammy had Down Syndrome and had some heart surgeries my daughter Dawn had told me. Dawn loved him so very much.

Sam was a special little guy that had a great life on this earth. He was treated with so much love and I hear he gave so much love also. All that met him just loved him. Dawn and Caitlyn had went many outings and vacations with him , his sister and Mom. He was a very special little guy . I heard he always had a smile on his face. Dawn was devastated when she heard the news of his passing. I told her to celebrate his life and just remember the times with him as good memories. Mary Ann his mom is one of those Moms that you learn from. She was one of the best moms I have ever seen. Sam got to do a lot in his short time here and Mary Ann had seen to that.

Here is more about Sam:


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Pontiac, Ill. -
The funeral Mass for Samuel S. Sartoris, 15, of Pontiac, will be at 11 a.m. Tuesday at St. Mary’s Catholic Church, Pontiac.
Monsignor Thomas Mack, Father Michael Bies and Deacons Jim Wallace and George Wagner will officiate.
Burial will be in St. Mary’s Catholic Cemetery, Pontiac.
Friends may call from 4 to 8 p.m. Monday with the Rosary to be recited at 3:45 p.m. at St. Mary’s Catholic Church, Pontiac.
Duffy Funeral Home, Pontiac, has charge of arrangements.
He died at 9:11 p.m. Thursday, Jan. 1, 2009, at OSF Saint James-John W. Albrecht Medical Center, Pontiac.
He was born Oct. 11, 1993, at Pontiac, the son of Vincent M. and MaryAnn (Gernentz) Sartoris.
Surviving are his parents, of Pontiac; two brothers, Vinnie Sartoris, Chicago, and Donald Sartoris, Los Angeles, Calif.; one sister, Rhiannon (Jason) Long, Pontiac; aunts and uncles, Tony (Jacquie) Sartoris, Christine Sartoris, Nick (Caroline) Sartoris, Donna Sartoris, Sue Harrington, Phil (Carol) Sartoris, Kathleen (Roger) Reum, Mike (Sandy) Gernentz, Barb Thompson, Jim (Cheryl) Gernentz and Diane (Jim) Johns; his nephew and best friend, Marcus Long; his niece, Maria Long; his maternal grandmother, Vera Gernentz, Pontiac; and his paternal grandparents, Dave and Ann Sartoris, Pontiac.
He was preceded in death by his maternal grandfather, Donald Gernentz.
Sam was a freshman at Pontiac Township High School.
He was a member of St. Mary’s Catholic Church, Pontiac.
Sam was an avid golfer and helped keep score for the Nik Macker Association Basketball. He was an altar server for St. Mary’s Catholic Church and was Disney’s #1 fan.
Sam was a special gift we were given for such a short time on earth. He loved everyone he met and truly enjoyed life to its fullest.
Online condolences may be made at duffyfuneralhome.com.
The family wishes all contributions to be made to the Children’s Hospital of Illinois at OSF Saint Francis Medical Center, Peoria, St. Vincent DePaul Food Pantry or to St. Mary’s Catholic Church.


Please send Prayers our way also For Lizzy and to help guide us through the months coming to make the right descisons on our future. We do not want to leave this area but may have to.