Update and Please Vote - Living with Spinal Muscular Atrophy Type 1

Finally an update.

 Ever just want to drop quick your computer? Grrrrrrrr My home pc has been totally malfunctioning since before Christmas and just kept getting worse. I would think I had it fixed then it would no work. I have tried to post updates this past week and then my pc would NOT RESPOND . Jessica my daughter  got a newer PC and she gave me my old one back. It took all night last night to clean it up and update it but I am BACK!!  Very annoying to say the least to not be able to get on your PC and not be able to to a hardly anything.

Lizzy had a small fundraiser last week-end in Streator. It was mainly her Dad's  family   ( many have never met Elizabeth) . It was nice. It was basically a fundraising family reunion with benefits. LOL. We had thought it was the motorcycle club the Screaming Eagles and Ladies of the Moose having the benefit for Lizzy. Well Saturday we found out it was the Eagle Club ( Men's club much like the Legion) that donated their hall for the event and paid the DJ . It was VERY nice. for them to do that for her.  Lizzy had a great time. She looked beautiful . She had on a deep pink dress and looked like a princess. She wore ballet shoes and did not want not the night to end.

  They raised just under $2000.00. This will help so much with some needs for Elizabeth's . It will help with her MFR therapy  and some of her medical travel. Which helps so much. It was Elizabeth's Dad's Grandma that did this wonderful thing for Elizabeth. It was a very interesting evening. Brandon had not seen his Dad in 13 years or any of his aunts or uncles for years. It was like a TV reality "The Locator" . It was so amazing they all got together to for Elizabeth. They came from all over. It was a very emotional night for Brandon.


Lizzy is our miracle.
"We believe in miracles because we live with one"
www.our-sma-angels.com/elizabeth

Here is what I am asking of you all.

The Chase Community Giving campaign voting on Facebook is extremely close and GSF is right in the thick of it. We are neck and neck for a spot in the top six and we currently have nearly 20,000 votes -- and a real chance to win at least $100,000 for being voted in the top six or $1,000,000 for being voted #1.


WE NEED YOUR HELP -- every single vote is absolutely critical!

We need you to do the following TODAY:VOTE on Facebook -- http://VoteForSMA.com -- if you can't get through, please keep trying as Chase is having load issuesPOST the link to your Facebook wall -- http://VoteForSMA.com -- if you already did this, please do it again and again and again all weekPOST the video to your Facebook wall -- http://www.youtube.com/watch?v=RQkUwDEou7QEMAIL the voting link + the video to at least 20 people -- http://VoteForSMA.com + http://www.youtube.com/watch?v=RQkUwDEou7QTWEET the voting + video link -- http://VoteForSMA.com + http://www.youtube.com/watch?v=RQkUwDEou7QThis is an incredible grassroots movement that we are all part of and what we are accomplishing is truly incredible. There is enormous passion behind GSF: fighting for SMA funding and raising a ton of SMA awareness in the process. Thousands of people have come together to fight this cruel disease and give these vibrant children dying of SMA the future they so deserve. For us, it is truly humbling to see what each and every one of you is doing to make this miracle an SMA reality.

Dig deep and please keep rallying for us -- voting ends this Friday, Jan. 22, so time is short. Be part of a MIRACLE today

 Check out MJ's  Video: Its awesome!!
http://www.youtube.com/watch?v=dStn7BBKmWQ

"We believe in Miracles because we live with one"