First Snow - Living with Spinal Muscular Atrophy

Its snowing and Elizabeth is just so tickled. She wants to go out side and sled and it just started snowing!! See the blur above that was Pepper pulling Lizzy last year and she wants to do it again!! I have gotten a new camera since this!! My brother and his kind heart got me a new one for Christmas last year.

Lizzy is totally over her last illness and while it did cause her to become much tighter in her joints but with the help of Linda her Myofascial Release Therapist and me working on her she is not so tight. Her back today is straighter also. Thank Goodness. I was worried. She has been pivoting to the one side really bad since her illness while in her power chair. I did stretching every day while she was sick as usual but this time I really noticed how tight she had gotten every where. I need to also get a hold of Tony at Plattners because her TLSO has not fit her right since she has gotten it and she NEEDS new AFOs.

Elizabeth started on some breast milk from a new donor and doing awesome on it. Its very exciting for Lizzy to get newborn donor breast milk.  The new born breast milk contains in the first few days contains colostrum and builds immunities. This stuff is great for Lizzy  Christen met the mom on WED that is donating to Elizabeth.  Another awesome lady!! A former breast milk donor of Elizabeth's set this up for her. We are so excited to have this milk for the winter. She is going to pump for Lizzy as long as she can. We call it "Elizabeth's Miracle blend." made with love.

Elizabeth and I have talked about all sorts of stuff this week. She is so funny and her comment when she doesnt like something or something is not going her way is " nice".   Its too funny.

She is getting all excited about Christmas.

Many prayers for MJ , Jake and Stella as they are not feeling well.
Keep Lizzy in your prayers also!!
"We believe in miracles because we live with one"
www.our-sma-angels.com/elizabeth