Happy Holidays from the Hope & Light Foundation
Thanks to so many generous donors and supporters we were able to offer more hope than ever to children with SMA and their families! A research grant enabled Dr. Ching Wang at Stanford University Medical Center to continue his work and drug trial for SMA Type I. In this issue you can read about a child who is benefitting from the drug trial. Please take a moment to read Lizzy's Story and learn how gifts like yours help make miracles happen! You can also read about the Hope and Light Foundation's Medical Conference which updated doctors, therapists and parents on the latest care and treatment options for SMA.
As we wrap up 2009, I would like to take this opportunity to thank you for your support, prayers, and gifts of healing and hope!
Best wishes,
Stephanie Miller
Co-founder and President
Conference Sheds Light on Advances for SMA
The Hope and Light Foundation took on the ambitious project of organizing a regional conference to disseminate information about the care of children affected by SMA. The Conference on Standard of Care and Therapeutic Advances for SMA took place on May 2, and was held in partnership with the Emory University School of Medicine, Department of Neurology. Read More.
Believe in Miracles: Lizzy's SMA Story
It was love at first sight when Jeanna Huette laid eyes on her granddaughter Elizabeth, born on Sept. 29, 2003. The baby, who would be known as Lizzy, was the first child born to her daughter Christen.
I remember when Lizzy was being tended to shortly after birth, she heard my voice and lifted her head to look over at me and our eyes met for the very first time. It was love at first sight; it was also the only time I was able to witness Lizzy holding her head up unassisted, she said.
To read more about Lizzy's amazing 6-year battle against SMA, please click here http://www.hopeandlight.org/lizzy1.html
Online Charity Auction for Hope & Light on eBay
The Hope and Light Foundation Online Charity Auction was a huge success! Thanks to everyone who supported the fundraiser. It's never too early to start helping with next year's auction. If you would like to volunteer for the 2010 event, please contact Stephanie Miller at 678-591-8331 or smiller@hopeandlight.org
Our Mission: Through faith, hope, and love, the Hope and Light Foundation endeavors to eliminate Spinal Muscular Atrophy, empower our community, and create a foundation stone upon which cures for all childhood genetic diseases can be built.
Connect With Us
Give a Gift of Hope http://www.hopeandlight.org
As the year comes to a close, each and every gift helps. Gifts of all sizes make a difference! To make a year-end gift or become a monthly donor, visit our donation page.
Visit Hope & Light http://www.hopeandlight.org
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