"Sense of Deep Love and Caring" Living with Spinal Muscular Atrophy

The "crisp" cold air hit here last night and the "Smell of Snow" stirred my senses.  No snow as of yet here but in the area they did have a few flurries yesterday in surrounding areas. 
The Christmas season warm bubbling inner peace has consumed me. Feels, so great to have that "sense of  deep love and caring" for all your friends and family . These feelings are  so very strong this time of year.  Its the season of miracles. I love this time of year. The warm glowing warmth inside your soul.

Lizzy's ramp is decorated with white lights , garland and red bows waiting patiently for Santa's big entrance. She is so proud it was her idea to do this year.   It will be a wonderful Christmas for Elizabeth.
Comparing last year to this year and seeing how she is cares for so many people, how she remembers so many people and things about them at six is just amazing. She is so wise for her young age.

We have met so many families this year that many have actually looked at Elizabeth as " Hope". For so many babies to be diagnosed and to find "Hope" in that tunnel of fear and heartache is something they need to find to be able to lead a life like we do. Its not a bad life. It is a "Safe Life". We do what we need to do for our own. We also have our inspirations( besides Elizabeth) that keep us fighting for her. We have met so many wonderful people. I have said it before " Never have I ever had friends like I do now". I feel like we are family . We are all a part of each others world.
We have special friends also that are making sure this is a Christmas that Elizabeth remembers. They have touched my heart in ways that leave me breathless to the act of kindness and caring they have shown for her. Thank you from the bottom of my heart. I can not thank you enough.

Elizabeth did not get picked as the IL MDA Goodwill Ambassador but that is okay.  (sigh of relief) We have a VERY busy life( In the Spring& Summer)  any way and even for Elizabeth to be nominated is an honor.
I have never met the new local MDA Goodwill Ambassador or the IL one. They picked boys for this next year.  Its great to actually have a MDA news letter now that gives you that info about the kids and their families. We found out today when we recieved the news letter. We will still help out when needed when we can.


Many prayers for MJ and our friend Jake G and they both are sick.
We have many of you in our prayers. Thank you for those of you in our life.

"We believe in miracles because we live with one"
www.our-sma-angels.com/elizabeth