Lizzy is on bipap basically 24/7 right now except for treatments. thick nasty gunk. She is maintaining 96-100 O2 on bipap no O2. She is doing well considering how sick she is. Christen and I have had to tag team her for treatments last few days. She is getting treatments around the clock every 2-3 hours. Called UW again and doc for pulmo on call said that if we can not handle it take her to the hospital but she is doing well with us doing her treatments. . Its been hard but we are doing it. We sleep when she sleeps. Treatments are taking over an hour.
Will update when I can.
Sorry I have not been online. Been too busy with Lizzy.
Keep the prayers coming!!!!!
www.our-sma-angels.com/elizabeth
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