Illness update on Elizabeth - Spinal Muscular Atrophy

Not much change in the last 48 hours. Elizabeth did say her throat is not hurting so bad. Today she is VERY WHINY and having major hissy fits over nothing. No pleasing her today. She is miserable. Poor sweety. Typical sick six year old.


I have not been online too much this week. Treatments and home schooling is about all I am able to do. She still wants learn even though she is sick. She takes a lot of attention these days and being sick takes even more. I am not complaining believe me its just fact. I seem to be the only one around here with patience. Paul has helped with Lizzy so I can do dishes laundry etc. here and there

 She has had no fever and she is on antibiotic now.  It is a cold or sinus infection. Runny nose and sore throat. Her air movement is good but she has sinus drainage and its causing her to cough . She does cough on her on own sometimes but it is not productive enough to get the junk in the back of her throat out.
Keep her in your prayers.
 
MJ is also not feeling good and we are very worried about her. Lizzy said "MJ has been sick a long time cant they make her better? " She added she needed to see DR.Schroth. Well, I explained to her that MJ lives far away from DR.Schroth. We have had MJ is our prayers please add MJ to yours too.
 
Our friend Charlie has been sick, Sophia has been sick, Aaron has been sick, Madison has been sick and so has Hannah. Please add them all to your prayers.
 
I have added an email from Brenda MJ's caregiver:



From Brenda MJ's care-giver:




This is Brenda emailing from Nationwide Children's Hospital in Columbus, OH yet again. I am writing to get your help.



MJ was re-admitted to the hospital after 2 weeks at home after battling H1N1 at home, along with a lung infection (psuedomonas) and a GI virus. Right now, MJ is battling pneumonia, the psuedomonas, and an UTI. The doctors have decided to give MJ's belly a rest and she is now off GI food and getting food via her veins (TPN). MJ has been refluxing since then (we guess her belly really wants to eat or something, but it is clearly not happy.) She has aspirated some of the reflux as well - hence the pnemonia.



Anyway, MJ's doctor (Dr. Shell) issued MJ a challenge....to get 80 cards sent to her by tomorrow. Cards are printed out around 9am, so he issued MJ a challenge. Upon card delivery tomorrow, there should be 80 cards brought up. He does not believe that 80 people would send MJ a card. Lets show him how wide and big the world is. Please help and show Dr. Shell how many people MJ knows. Send it on to your friends too. Thanks.



1. Go here to create a card (http://www.nationwidechildrens.org/gd/applications/greetingcardpro/choosedesign.cfm)

2. Choose a card from the selection

3. On the next page, you have the option of using the default image, choosing from the ‘card’ gallery, or downloading a picture (one of your own or one from the internet)

4. The info you will need:

Patient’s first name (top line) - MJ

Patient’s full name - MJ Purk

Patient’s room number - T5103



NOTE: Any cards not printed tomorrow morning will be printed Wednesday, which will be great, too.



That’s it - and feel free to pass the info on!



If you prefer, real cards can be mailed to:

Nationwide Children's Main Campus

c/o MJ Purk, Room T5103

700 Children's Drive

Columbus, OH 43205
 
 
 
"We believe in miracles because we live with one"
www.our-sma-angels.com/elizabeth
 
 
Please watch a news story about our friend in Canada named Shira:
http://www.youtube.com/watch?v=8DVvfDm2Q_Y&feature=player_embedded