Soaking up some Vitamin D - Spinal Muscular Atrophy

Just a real quick update on Elizabeth.
I took Lizzy out-side today to get some sun. Its been raining here a lot so we do not get out side much. It was warmer than it has been today and her and I needed to get outside.  She drove around the yard and on Becky's drive way, up and down the ramp many times then she spotted a Monarch butter fly. She was amazed and asked all sorts of questions about the butterfly so after we came in we learned all about butterflies.  She told her papa after our lesson and talking about butterflies on how they are caterpillars, they eat a lot then..... they build a house called a cocoon, then they take a long  nap and wake up and become beautiful butterflies. She listened well.

We have been very careful not taking Lizzy any where in public even though she did have her H1N1 shot. She gets her booster in for few weeks. I still am worried about her getting the virus.
Christen and Brandon went to give a presentation at the Bloomington Fire Dept for the MDA tonight. The fire dept raised around$ 8,000 all together for the MDA.   Good job!! Brandon and Christen talked about what the MDA does and what the MDA has done for Elizabeth.
Lizzy and I stayed home . We did school work most afternoon except when we went out-side . She soaks up everything up so well but teaching her to read has been a challenge. She can so stubborn and very selective  on what she wants to learn.

Caitlyn is getting better and Corbyn is getting better also. He has Roseola. He still has the rash but his fever is gone.

Many prayers for our friend Jacob that has H1N1. He is in the hospital intubated in N.C. He is also has Type 1 SMA like Lizzy.We see him at Stanford and  we spend time together at CCK in Kentucky. We are very worried about the little guy. Get better quick Jake.

Many prayers for all the sick kids!!

"We believe in miracles because we live with one"
www.our-sma-angels.com/elizabeth