Wednesday, September 10, 2008

Spinal Muscular Atrophy Type 1 (SMA1) is a genetic disorder that occurs in 1 in 4 children born to parents who both carry a recessive gene for it. (1 person in 40 carries such a gene.)Children born with the disorder gradually lose strength in their nervous systems and die, usually by the age of two.There is no known cure or long-term treatment. However, the National Institutes of Health (NIH) and the National Institute of Neurological Disorders and Stroke (NINDS) have selected SMA, out of more than 600 neurological disorders, as the disease closest to being understood and a treatment or cure developed.Gwendolyn Strong is a ten-month-old girl who was diagnosed with SMA1 in April. Her parents have started a petition to take to Congress to support the SMA Treatment Acceleration Act, a bipartisan proposal to increase funding for this disease. We hope to get 50,000 signatures. I hope they get a lot more.Please consider taking a few seconds to sign the petition:http://www.petitiontocuresma.com/
We need to save these babies and these kids!!!

Lizzy is raising money for the MDA for the Stride and Ride . With out research we do not know where we would be today. Lizzy was in a clincal study at Stanford that the MDA help fund.
Please help donate to the MDA. Research is so important for the future of these kids . Help save Babies!! Help save kids!! please donate!! https://www.mdaevent.org/ParticipantInfo.aspx?j=39713595-7cdd-486f-b431-7422913418c0

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